Patients | Informal caregivers | Patients, as described by physicians | Patients, as described by caregivers | |
---|---|---|---|---|
Impact on work, n (%) | (n = 33) | (n = 21) | ||
No changes | 6 (18) | 5 (24) | – | – |
Feeling disadvantaged at work | 3 (9) | 1 (5) | – | – |
Limiting activities at work | 14 (42) | 9 (43) | – | – |
Work interrupted | 10 (30) | 6 (29) | – | – |
Spare-time activities before the diagnosis of HF, n (%) | (n = 70) | (n = 33) | (n = 79) | |
Social Life (i.e. dinner with friends, theatre, etc.) | 32 (46) | 19 (58) | 39 (49) | – |
Sport | 17 (24) | 5 (15) | 10 (13) | – |
Work and little spare time | 10 (14) | – | 13 (16) | – |
Taking care of the family | 7 (10) | 8 (24) | 13 (16) | – |
Gardening | 4 (6) | 1 (3) | 4 (5) | – |
Impact on daily activities today, n (%) | (n = 69) | (n = 32) | (n = 74) | (n = 44) |
Social life (i.e. friends, theatre, etc.) | 18 (26) | 5 (16) | 34 (46) | 5 (11) |
Light physical activities (i.e. bike, walk, etc.) | 14 (20) | – | 14 (19) | |
Reading and watching TV | 7 (10) | – | 1 (1) | |
Taking care of the family | 5 (7) | 7 (22) | 4 (5) | |
Art (i.e. painting, music, etc.) | 3 (5) | – | 5 (7) | |
Limited activities | 15 (22) | – | 10 (14) | 18 (41) |
Impossible to restore activities | 6 (9) | 9 (28) | 6 (8) | 16 (36) |
Activities not restored due to fear | 1 (1) | 11 (34) | – | 5 (11) |