Table 3 Categories and original data from the theme ‘Coordinating care and self-care (getting the diagnosis)’
Category | Data |
|---|---|
Examples of coordinating care | [To interviewer] The [medical correspondence] is upstairs, so this is from this time last year, really, mainly letters of appointments and everything. But that may give you some idea. (Carer of P9) |
Burden of coordinating care | Well, of course, if I phoned [GP practice] for [Participant], I always phone a few minutes before 8:30 and you can’t always get anyone and then you phone again and it’s engaged, so you just have to keep trying. (Carer of P6) |
Advocating for participant | Participant: Yeah, because we did find, you phoned the secretary, didn’t you and you said to her… |
Carer: Well I asked what number he was on the list and she said number 16…the following week I thought I’d ring… So I rang her again to see what number he was on the list then and she said number 16 and I said, “Have they not done any operations in the last week?” “Oh yes, loads” she said, “but they were all emergencies”. And I said, “Well I would have considered this as an emergency really, if it’s to do with his heart.” (P12) | |
Self-care | I usually say to him so just sit down and get your breath back. Get yourself settled down, and see how things go, and he usually calms down. (Carer of P13) |