Table 1 Transition Intervention: summary of characteristics and content
Characteristic | Session 1: Emphasis on Education (Held at time of enrollment) | Session 2: Emphasis on Self-management (2 months post Session 1) |
|---|---|---|
Aim | To inform participants about their heart condition | To motivate participants to self-manage and selfadvocate |
Approach | Didactic/educational | Experiential/engaging |
Role of nurse | Teacher | Facilitator |
Mechanism of change | Cognitive/learning | Behavioral/applied action |
Content | a) Introduction to transition/its importance | a) Discuss education-related goal set in Session 1 |
b) Discussion of confidentiality, promote trust with RN | b) Discussion of “self-management” and its relevance to health | |
c) Creation of MyHealth passport, including | c) View & discuss six 1-min videos illustrating interactions between a health care provider (HCP) & young adults with poor vs. strong assertiveness skills | |
- name of cardiac condition | ||
- previous cardiac interventions | ||
- name and purpose of medications | ||
d) Review cardiac anatomy (patient-specific) | d) View & discuss “Talking with your doctor” video; review GLADD approach (Give, Listen, Ask, Decide, Do) | |
e) Discussion of potential future cardiac complications (patient-specific) | e) Role-play an interaction between a HCP & the participant who practices being assertive | |
f) Review names & location of local ACHD cardiologists | f) Discuss SMART goal setting (Specific, Measurable, Attainable, Realistic, Timely) | |
g) Introduction to relevant websites | g) Review booklet “When You’re 18”, take home | |
h) Discussion of 3 scenarios addressing alcohol, smoking/street drugs, & sexuality/contraception | h) Visit website “Health Care Transitions” | |
i) Introduce youth-oriented take-home written materials | i) Encourage email or text messages with RN. Questions posed within 7 days: | |
1. “What helped you the most?” | ||
2. “What helped you the least?” | ||
3. “Do you have any questions for me?” | ||
j) Set one education-related goal for session 2 | ||
k) Accompany participant to the ACHD clinic | ||
l) Provide study email address; encourage emails or text messages with RN. Questions posed to participants within 7 days: | ||
1. “Where is your MyHealth passport now?” | ||
2. “Have you used your MyHealth passport or shown it to anyone?” | ||
3. “Do you have any questions for me?” |